My Story...
Hi I’m Alex and I’m a marine engineer, while working out in the Caribbean in 2006 during some leisure time I went swimming and my whole life changed in an instant... I hit my head on a sand bank and broke my neck. The vertebrae at c5 fractured and c6 broke into three parts one of which damaged my spinal cord, leaving me paralysed from the chest down. More
K9


Positive thoughts….

Some people and their problems

mine are what you see…

But all that you see.. isn’t me, to see me you have to look deeper, right down into What might just be… the real me, who that was I thought I knew… but who I am, I may never even know

I’d like one please

Action track standing off road chair!

14th may

Autonomic dysreflexia

Apparently when the ambulance came and took me to hospital the other week, where I had lost sight in my left eye (I thought it was just migraine from the headache) it was the starting signs of having a stroke! I was in stoke mandaville yesterday for mri X-ray and ultra sound on kidneys and they told me, I’ve torn my shoulder and have to go for an mri on that as soon as they book it.

It shows the importance of knowledge (self and to others), I feel I have a good understanding of autonomic dysreflexia… 22 major episodes in 11 years, but you need to know for emergencies and be prepared for the extremes..

I feel I was able to deal mostly throughout these years, but got a little “blasé“ about the level that is “MEDICAL EMERGENCY” and the level that autonomic dysreflexia has – risk of death!

If you’re new to your injury you have to come to terms that the local authorities and even the GP and hospitals don’t have the knowledge regarding this… so researching and teach yourself, you need information from specific spinal hospitals

Don’t die painfully.. we all go, but try for peaceful at home in your bed once you’ve lived a life

Be aware.. don’t worry all day, if you’re prepared then when it happens you and those around you can deal with it efficiently and quickly

Advice and knowledge is best gained from specific spinal hospitals (also google..)

“Hope”

A very little word with very broad shoulders

You may be looking for something that is right in front of you, but until you open your mind to the world around it, you will stay blind to what it is that is there staring right at you

My biggest real true to this life fear right now…..

I can’t physically or mentally do this much longer

Roll on Tuesday, this heat is not nice….

Autonomic dysreflexia two days previous took me to hospital, blue lights in the ambulance, a day spent in a&e to no avail, I can only guess at the cause, something, some pain within my body maintaining my blood pressure at a level just below AD, any stimulus to my body pushes me into the dangerous level

Maxed out at 268/127…

My life at the minute, on the edge of autonomic dysreflexia every day at present, pain beyond any other, I’m not afraid of Dying, I’m afraid of losing dexter… when my head feels like it’s cracking open the thoughts I have are I’m ready to go.. but all he gets me though everyday, he is my keeper, I’m not his owner, he keeps me fighting through the unbelievable pain of autonomic dysreflexia