Alex will walk again

We now know the fault with the car… just needs the part (as always)..

I will soon be getting some parallel bars (these are being built at Hop Engingeering, Staplehurst, this is also where i started my engineering career.. work experience from school, they have also done some adaptions to my chair) to work with my harness.. normally when I’ve stood before i used crutches.. these have proven to be a bit to unstable, so should receive them before Christmas.. and will be able to maintain some physio through the Christmas period.

Plus.. if you see the diary in “inside a coma” it starts two years ago yesterday, and has been written for each day that i spent in the coma, by my sister Jennifer.. she wrote it as if she was talking to me.. (if you click on the text it gets bigger) i woke on her birthday.. Jan 7th, i was ment to be in the coma for between 6-8 months… so from the start i’ve been fighting.

My car has given up.. the problem is they can’t find anything wrong… which is the worst type of problem.. 

This means no Standing Start… I have maintained my FES bike and still have Steven Barwise twice a week, no matter what happens in life there are always set backs.. i do have my new harness that allow’s me to free stand here at home, i will take photographs and post them on here soon..

Apart from this.. MERRY CHRISTMAS X

look to the future… but don’t wish your life away! use what you have and you’ll adapt for the future - but yes… bring on the good times

I don’t want to survive…. I want to LIVE!

Bring on the future… who knows what it will hold….

I’m thinking of doing something exteme to raise some money for the research over in Miami…

can i have any opinions.. and comments of support, for and against please!!

I just feel all the fundraising for me going on.. i could do a little in return.. it would be for the Buoniconti fund - from the Miami cure for paralysis.. i was going to get this symbol tattooed on my right leg…please let me know what you think??

American Chopper would be jealous!

First of all this doesn’t account for all Doctors… there are some really good ones out there (Dr Levi, Dr Green - all the team in Miami..)

But i have found that through the time i’ve been injured, as most SCI people (Spinal Cord Injury) will probably agree.. when at the Doctors - if i ask about a problem regarding my injury, the answer is normally.. “you’ll know more than me…” this as you can imagine is very frustrating… as if not being able to move isn’t bad enough.. i find Facebook more useful! so i have had to find out a lot myself… hopefully my website can help other people with their problems.

This a very good question i have recently been asked….

How will i control movement through my body..?

Some of it is to do with the drugs i take ( i have to take six different types of pills..14 through the day ) i’m coming off one now - eventually all of them.. i have muscle “spasm’s” its all to do with potassium, sodium and lactic acid build up within the body..the potassium and sodium react and produce an electric pulse/signal.. the lactic acid is a byproduct of muscle usage - all this together creates an “energy” within my legs.. plus you send signals to your muscles all the time, its easy to send a signal but hard to stop it, i’m an “incomplete” injury - it means my spinal cord was damaged but not cut.. so signals still get past..(its hard to explain..i never experienced it prior to my accident) the baclofen (the drug that i’m coming off) it suppresses this signal.. but also suppresses nerve regeneration and its a sedative.. and it’s got alsorts of side effects (as any drug has..) also there’s gabapentin.. this is for nerve pain, everywhere thats paralysed burns… this again is due to broken signals, the good thing is that means there are pathways through the point of injury, (my feeling is improving.. i score 77 out of 112 on pin prick sensation) the drugs make me more comfortable… but i’ll be more comfortable when i’m walking! recovery over comfort at the moment, anyway to answer your question.. i can control that “energy” to initiate the movement, this at the moment will make me more independant and help my recovery… plus they are constantly improving the research into a cure all over the world, all the time.. i have links to the research on here..

that really is a fantastic bike!! hand made on board the Westerdam, to be auctioned to raised money, made up from parts of the Westerdam… 

I could walk two years ago today…… give it time - and i will again.. each week i’m reaching new goals